Regretably wrote a letter today to GOM's neurologist in London asking to cancel his next appointment on 18th July and for a referal to a neurologist at our local hospital.

The National Hospital of Neurology and Nervous diseases (NHNN) is the recognised 'centre of excellence' for MS and other neurological problems. It was very convenient to go there when GOM was working, however the last 4 years since he retired in 2000 have been increasingly difficult. At first we could still get public transport (train and bus), but the timing of our appointments always meant we got caught in the london 'rush hour'. Then we asked for the appointments to be switched from winter to summer months so that the neurologist could see how the heat was affecting him, but this resulted in having to get a taxi last year for an emergency visit. We didn't get much change out of £100. We were able to arrange hospital transport for the next visit, but this is very hit and miss and with 12 months between appointments it wasn't possible to arrange this time.

Then with the recent developments with the fatigue we took the decision that even if we could arrange a car, it was going to be difficult for GOM to get out, so we wrote the letter. Post it tomorrow.

We've had a recommendation of a neurologist from one of our local MS group, but don't know if we'll be able to get him or not. He's not based at the nearest fo the hospitals in our local group, but it will still be a lot cheaper than going to london. An d we already have connections with the local hospital MS rehab team, so it should tie up quite nicely