Things all changed after Monday and they decided that rehab could't do any more for my GOM and he would have to come home with an enhanced care package.
What they initially offered us wasn't acceptable - only home care, physio and catheter maintenance, but after a bit of a battle they also agreed to write up a standby supply of antibiotics. We had evidence to back up our argument as when the infection re occurred when he was at the rehab hospital, there was less of an impact on his system because they were able to treat it immediately, but when he's at home we would have to wait to see or speak to a doctor, and this delay could result with him ending back up in hospital, which no body wanted.
He was discharged on Thursday afternoon and the home care assessment restarted on Thursday night. It's the same team as before, so they know how good he can be, and they can see the difference between then and now, so hopefully they will keep the assessment going until he's reached something near the mobility that he had before he was admitted for the second time.
Friday he was able to transfer and move quite well, but Saturday his upper body strength was quite poor so it was quite evident that he'd suffered a bit from his activities of the previous day.
Have set up an old portable tv in the bedroom, as they usually come in to get him ready for bed between 7pm and 8pm, but he doesn't like to lay down that early.
We have the district nurse lined up to come in to see David on Tuesday. They have ordered a spare supply of catheters and leg bags, although they were able to drop off a few spares of the leg bags (albeit smaller) for us on Friday.
Sister in Law came down for a visit on Friday and sat with him while I went into town to get some provisions. She has booked an appointment for us to see his neurologist privately on 14th May. On NHS we couldn't see him before 27th June. We want to see if we can begin a course of treatment to stabilise the ms, in an effort to reduce the impact that these infections have on his system. We will then try to bring forward the operation to fit the other catheter, as this will also reduce the risk of infection. Therefore attacking the problems form both sides, instead of just treating the symptoms of any infection as they occur.
